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Lupus
Autoimmune disease is the fourth leading cause of disability in women.
There are over 80 different disorders, such as lupus, multiple sclerosis,
and rheumatoid arthritis. Seventy-five percent of these illnesses occur in
women, mostly of childbearing age. Lupus is three times more common in
African-American women, even though women of all races get lupus. With
autoimmune disease a person's immune system, which fights off disease and
infection, attacks healthy tissue, making a person sick. Autoimmune
diseases are hard to diagnose and treat. People can suffer a great deal,
both physically and mentally, before health care providers figure out what
is wrong.
Lupus and other autoimmune diseases can affect a woman's body image in
many ways. Physical changes a woman has no control over can occur. With
lupus, there is a trademark "butterfly" rash on the face and
hair loss. Fatigue that can often be extreme is a partner in all of these
illnesses, and can lead to depression. Coping with not feeling well,
sometimes every day, can be very stressful. A woman may lose her
independence or not be able to care for her family. It is important for
women to talk about their concerns and to get the support they need. Many
advances are happening with the diagnosis and treatment of autoimmune
diseases. The National Women's Health Information Center has provided the
following publications and organizations to help women learn more about
lupus and other autoimmune disorders and how to maintain a positive body
image.
Publications
-
Understanding
Autoimmune Diseases
This publication offers information on the immune system, how
autoimmune diseases affect it, who are most affected by autoimmune
diseases, possible causes and available treatment options.
-
Autoimmune
Disease in Women - The Facts (Copyright © AARDA)
This Internet site provides information that is specific to women and
provides specific information about some of the main autoimmune
diseases and their treatment.
-
Systemic
Lupus and the Nervous System (Copyright © Lupus Foundation of
America, Inc.)
People with lupus often experience headaches, confusion, difficulty
with concentrating, fatigue and occasionally have seizures, strokes,
or other signs of nervous system involvement. Nervous system
involvement in systemic lupus erythematosus (SLE) is unclear and
controversial. This brochure will briefly discuss how lupus may affect
the nervous system, categorize the many signs and symptoms associated
with nervous system involvement, review the diagnostic work-up and
discuss disease management.
Organizations
-
National Institute of Arthritis
and Musculoskeletal and Skin Diseases, NIH, HHS
-
American Autoimmune
Related Diseases Association, Inc.
-
Arthritis
Society, The
-
Lupus Foundation of
America, Inc.
-
Lupus Foundation of
Greater Washington
-
National Jewish Medical
and Research Center
= Federal
government resources
Text on this page last updated:
September 2001
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